Ethical, legal, and social issues in the Earth BioGenome Project
Sherkow J.S.; Barker K.B.; Braverman I.; Cook-Deegan R.; Durbin R.; Easter C.L.; Goldstein M.M.; Hudson M.; Kress W.J.; Lewin H.A.; Mathews D.J.H.; McCarthy C.; McCartney A.M.; da Silva M.; Torrance A.W.; Greely H.T.
Date Issued2022
Other AbstractThe Earth BioGenome Project (EBP) is an audacious endeavor to obtain whole-genome sequences of representatives from all eukaryotic species on Earth. In addition to the project's technical and organizational challenges, it also faces complicated ethical, legal, and social issues. This paper, from members of the EBP's Ethical, Legal, and Social Issues (ELSI) Committee, catalogs these ELSI concerns arising from EBP. These include legal issues, such as sample collection and permitting; the applicability of international treaties, such as the Convention on Biological Diversity and the Nagoya Protocol; intellectual property; sample accessioning; and biosecurity and ethical issues, such as sampling from the territories of Indigenous peoples and local communities, the protection of endangered species, and cross-border collections, among several others. We also comment on the intersection of digital sequence information and data rights. More broadly, this list of ethical, legal, and social issues for large-scale genomic sequencing projects may be useful in the consideration of ethical frameworks for future projects. While we do not-and cannot-provide simple, overarching solutions for all the issues raised here, we conclude our perspective by beginning to chart a path forward for EBP's work. © 2022 National Academy of Sciences. All rights reserved.
enkeywordsBiodiversity; EBP; ELSI; Ethics; Genomics
scopus keywordsarticle; biodiversity; endangered species; ethics; genomics; human; indigenous people; nonhuman; patent; sequence analysis; animal; ethics; legislation and jurisprudence; research ethics; Animals; Biosecurity; Endangered Species; Ethics, Research; Genomics; Humans
journalProceedings of the National Academy of Sciences of the United States of America
Document Type期刊论文
AffiliationCollege of Law, University of Illinois at Urbana-Champaign, Champaign, IL 61820, United States; Carl R. Woese Institute for Genomic Biology, University of Illinois at Urbana-Champaign, Urbana, IL 61801, United States; Center for Advanced Studies in Biomedical Innovation Law, University of Copenhagen, Faculty of Law, Copenhagen, DK-2300, Denmark; Global Genome Initiative and Global Genome Biodiversity Network, National Museum of Natural History, Smithsonian Institution, Washington, DC 20560, United States; University at Buffalo, School of Law, The State University of New York at Buffalo, Buffalo, NY 14260, United States; School for the Future of Innovation in Society and Consortium for Science Policy & Outcomes, College of Global Futures, Arizona State University, Washington, DC 20006, United States; Department of Genetics, University of Cambridge, Cambridge, CB2 3EH, United Kingdom; Wellcome Sanger Institute, HinxtonCB10 1SA, United Kingdom; Education and Community Involvement Branch, National Human ...
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GB/T 7714
Sherkow J.S.,Barker K.B.,Braverman I.,et al. Ethical, legal, and social issues in the Earth BioGenome Project[J],2022,119(4).
APA Sherkow J.S..,Barker K.B..,Braverman I..,Cook-Deegan R..,Durbin R..,...&Greely H.T..(2022).Ethical, legal, and social issues in the Earth BioGenome Project.Proceedings of the National Academy of Sciences of the United States of America,119(4).
MLA Sherkow J.S.,et al."Ethical, legal, and social issues in the Earth BioGenome Project".Proceedings of the National Academy of Sciences of the United States of America 119.4(2022).
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