气候变化领域集成服务门户(CCPortal): Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life

CCPortal

DOI	10.1073/pnas.2115860119
	Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life
	Cartney A.M.M.; Anderson J.; Liggins L.; Hudson M.L.; Anderson M.Z.; TeAika B.; Geary J.; Cook-Deegan R.; Patel H.R.; Phillippy A.M.
发表日期	2022
ISSN	0027-8424
卷号	119 期号:4
英文摘要	The field of genomics has benefited greatly from its "openness" approach to data sharing. However, with the increasing volume of sequence information being created and stored and the growing number of international genomics efforts, the equity of openness is under question. The United Nations Convention of Biodiversity aims to develop and adopt a standard policy on access and benefit-sharing for sequence information across signatory parties. This standardization will have profound implications on genomics research, requiring a new definition of open data sharing. The redefinition of openness is not unwarranted, as its limitations have unintentionally introduced barriers of engagement to some, including Indigenous Peoples. This commentary provides an insight into the key challenges of openness faced by the researchers who aspire to protect and conserve global biodiversity, including Indigenous flora and fauna, and presents immediate, practical solutions that, if implemented, will equip the genomics community with both the diversity and inclusivity required to respectfully protect global biodiversity. © 2022 National Academy of Sciences. All rights reserved.
英文关键词	Biodiversity; Indigenous Peoples; Open science
语种	英语
scopus关键词	article; biodiversity; fauna; flora; genomics; human; indigenous people; standardization; United Nations
来源期刊	Proceedings of the National Academy of Sciences of the United States of America
文献类型	期刊论文
条目标识符	http://gcip.llas.ac.cn/handle/2XKMVOVA/250886
作者单位	Genome Informatics Section, Computational and Statistical Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892, United States; Engelberg Center for Innovation Law and Policy, New York University, School of Law, New York, NY 10012, United States; School of Natural and Computational Sciences, Massey University, Auckland, 0745, New Zealand; Te Kotahi Research Institute, University of Waikato, Hamilton, 3216, New Zealand; Department of Microbiology, The Ohio State University, Columbus, OH 43210, United States; Department of Microbial Infection and Immunity, The Ohio State University, Columbus, OH 43210, United States; Genomics Aotearoa, University of Otago, Dunedin, 9016, New Zealand; School for the Future of Innovation in Society, Arizona State University, Tempe, AZ 85281, United States; The National Centre of Indigenous Genomics, The Australian National University, Canberra, ACT 0200, Australia
推荐引用方式 GB/T 7714	Cartney A.M.M.,Anderson J.,Liggins L.,et al. Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life[J],2022,119(4).
APA	Cartney A.M.M..,Anderson J..,Liggins L..,Hudson M.L..,Anderson M.Z..,...&Phillippy A.M..(2022).Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life.Proceedings of the National Academy of Sciences of the United States of America,119(4).
MLA	Cartney A.M.M.,et al."Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life".Proceedings of the National Academy of Sciences of the United States of America 119.4(2022).